I awoke this morning at 5:30. Now for some this may seem normal, but not for me. Not when I went to bed at midnight. But there I was, wide awake and having to pee. It should have been 8:30 or 9, but no, 5:30 it was. The scary thing is, at my chemo training the day before, the nurse said I would wake up at 5:30 to pee. I said she was crazy but she said just wait and see. And sure enough, 5:30 hit and I was up like a light. I Woke up queasy and not wanting to eat anything. Water doesn't taste good, saltines taste like snot and the worst were the doughnuts which tasted like burned creamed spinach:
Side note on doughnuts: My wife got Hostess or Entamenss. Usually a pretty good call, just didn't sit well. But how come the chocolate doughnuts in these prepackaged boxes of goodness are always sweaty? The fake chocolate always tastes good, but it can be difficult getting around the sheen of perspiration. It's kinda like hugging someone who has been working out. Yeah, the hug is good, but it takes away from the experience.
So, there I am, sick to my stomach and miserable when my wife says the magic word: Bacon. Everything is better with bacon. So, I had a bacon and lettuce sandwich on sourdough with mayo. Although it made me feel very white trash, , it tasted really good and, after a second sandwich, I was feeling almost like a spry 80 year old. Hooray for the healing power of Bacon. I have found my secret serum and am well on my way to battling the forces of evil. I think I am going to start a new chemo diet: Bacon, water and grapefruit. I'll write a 250 page book on how to eat just these foods when you are having chemo. I should make enough to just pay for my Dr's bills.
Wednesday, December 31, 2008
Tuesday, December 30, 2008
Chapter 3: The Poison Pump
Started Chemo today. Mostly unimpressed. 5 hours sitting in a chair getting 7 different medications pumped into me. Only one was painful, and there was no sickness at all. 2 months of people telling me how awful chemo was; the sickness, the pain, the hair loss. Yet there I was feeling fine, although bored, wondering what the big deal was.
Then it was dinner time.....
So, the queasiness started, but not enough to keep me from eating. And then it got worse as my wife was preparing the meal...
On a side note: If you are making food for somebody who is having chemo, don't make taco chili. Now, I appreciate the effort put in to making dinner for my family, but taco chili, really??? They know I'm going to be sick to my stomach and have problems eating and they bring taco chili. Please don't bring taco chili to your friends or family with cancer, bring something very bland.
So, my wife is getting dinner ready and I am getting sicker. She finally sets the taco chili down, I take one bite and it tastes like donkey butt (don't ask how I know, but I do). So, I put my spoon down and pick up the nice sourdough bread and figure I will be like my sister and just have bread for dinner. Problem is that the bread tastes like burned lamb brains. So, I force down some bread then sit on the pot for 20 minutes waiting for nothing to come out. Fortunately, my wife loves me, went to the store and got me doughnuts and Gatorade. Still tasted bad, but not as bad as taco chili.
So, sick to my stomach, food tastes like ass and I'll lose my hair in 16-21 days. They say it's worth it, except that I wasn't sick to begin with. Sure, some PET scan said I had lymphoma, but I wasn't sick. People would come over to bring food and look at me like I was faking it just to get free food. So, here I am paying someone to not only make me sick, but to make food taste like ass. Oh, and the Gatorade tasted like toilet water spiked with a bloody tampon.
Yeah, so worth it...
Then it was dinner time.....
So, the queasiness started, but not enough to keep me from eating. And then it got worse as my wife was preparing the meal...
On a side note: If you are making food for somebody who is having chemo, don't make taco chili. Now, I appreciate the effort put in to making dinner for my family, but taco chili, really??? They know I'm going to be sick to my stomach and have problems eating and they bring taco chili. Please don't bring taco chili to your friends or family with cancer, bring something very bland.
So, my wife is getting dinner ready and I am getting sicker. She finally sets the taco chili down, I take one bite and it tastes like donkey butt (don't ask how I know, but I do). So, I put my spoon down and pick up the nice sourdough bread and figure I will be like my sister and just have bread for dinner. Problem is that the bread tastes like burned lamb brains. So, I force down some bread then sit on the pot for 20 minutes waiting for nothing to come out. Fortunately, my wife loves me, went to the store and got me doughnuts and Gatorade. Still tasted bad, but not as bad as taco chili.
So, sick to my stomach, food tastes like ass and I'll lose my hair in 16-21 days. They say it's worth it, except that I wasn't sick to begin with. Sure, some PET scan said I had lymphoma, but I wasn't sick. People would come over to bring food and look at me like I was faking it just to get free food. So, here I am paying someone to not only make me sick, but to make food taste like ass. Oh, and the Gatorade tasted like toilet water spiked with a bloody tampon.
Yeah, so worth it...
Tuesday, December 23, 2008
Chapter 2: The Cancer Effect
Why does cancer bring out the best and worst in people? In the month I have known about my condition I have seen the bad, good and wonderful in my fellow man. But why cancer? I've had asthma all my life, certainly as life threatening as Hodgkin's, yet I was never treated differently. Well, not quite true, I couldn't get into the Army because of my asthma. But in general, I was treated like everyone else. Now, all of a sudden, I am either the most special person on the planet, or a leaper.
The compassion by some is simply unbelievable. We got an e-mail today from a couple whose only link to me is our shared religion and place of worship. They offered not only to babysit our children, but to cook us meals and do our grocery shopping. These are people I've met once and they are willing to do all of this. Now, either they have too much time on their hands, they are closet pedophiles or they truly understand the meaning of charity. Either way, the offer was just incredible. The love from some is simply mind blowing: A doctor who wrote off an old bill, a friend of my wives who cooked us meals; all of this truly reaffirms my belief in people.
Another consequence of my cancer is that it has brought my family closer. Amazing how a little disease can bring a family together. Brothers, sisters, aunts, uncles, cousins, parents; all have been very supportive. Now, I am blessed to have such a wonderful family who cares so much about me, but why does it take a bad thing to get family members communicating? I love my siblings, they are the greatest, but I have talked to them more in the past month than the last year. Now, I know I am not the easiest person to talk to, but it seems like we would have better things to talk about than how my latest biopsy went. Also, it is very weird to talk to family that I almost never talk to. It is awkward to have a conversation with my wife's aunt who I barely know. At times I feel blessed to have such a large family; at other times it feels like a burden, although a burden I am happy to bear.
The group I find the most interesting are the ones who treat me like I'm not there anymore. Yeah, they call my wife to find out how she's doing and make sure everything is OK, but they won't talk to me. It's like they will catch cancer by being associated with me. And when they do talk to me, I can tell that just talking about it makes them uncomfortable. Yeah, I have cancer, but I'm not dying. It's not like I have a large, hairy nut sack growing from my chin. Yet, that would make some people more comfortable than cancer.
Cancer can be a big deal, but only if people make it one. Yes, people can die from it, but more people die from eating at McDonald's. There are worse things in the world than a cancer, like liver and onions. I know it can be scary, but why is it any more scary than driving down the street or eating my mother in laws cooking. I do appreciate the good thoughts of others and all the help they have offered. And I understand why some people don't want to be near me like I haven't bathed in months (It's only been 2 days). What I don't understand is why this has to happen because I have something called cancer. It would be much easier to understand if I got these reactions because I teach at-risk kids, or have weird facial hair.
Like all things in life, we have to take the good with the bad. I will always have time for people who call and want to know how I am doing, although the answer will always be fine. I will be grateful for any and all help people are willing to give to my family and I will be understanding of those who can't be around me right now. One of the powers I have received as Cancer Boy is the power to deal with all things with a smile on my face so that I can help others with their fears and worries. And, once everyone is back in their happy place I can do that which I love most; spend time with my family and play HALO. Notice, people don't feel bad for me that I play video games - they make fun of me for that yet I die while playing video games; with cancer, I'm not even sick.
The compassion by some is simply unbelievable. We got an e-mail today from a couple whose only link to me is our shared religion and place of worship. They offered not only to babysit our children, but to cook us meals and do our grocery shopping. These are people I've met once and they are willing to do all of this. Now, either they have too much time on their hands, they are closet pedophiles or they truly understand the meaning of charity. Either way, the offer was just incredible. The love from some is simply mind blowing: A doctor who wrote off an old bill, a friend of my wives who cooked us meals; all of this truly reaffirms my belief in people.
Another consequence of my cancer is that it has brought my family closer. Amazing how a little disease can bring a family together. Brothers, sisters, aunts, uncles, cousins, parents; all have been very supportive. Now, I am blessed to have such a wonderful family who cares so much about me, but why does it take a bad thing to get family members communicating? I love my siblings, they are the greatest, but I have talked to them more in the past month than the last year. Now, I know I am not the easiest person to talk to, but it seems like we would have better things to talk about than how my latest biopsy went. Also, it is very weird to talk to family that I almost never talk to. It is awkward to have a conversation with my wife's aunt who I barely know. At times I feel blessed to have such a large family; at other times it feels like a burden, although a burden I am happy to bear.
The group I find the most interesting are the ones who treat me like I'm not there anymore. Yeah, they call my wife to find out how she's doing and make sure everything is OK, but they won't talk to me. It's like they will catch cancer by being associated with me. And when they do talk to me, I can tell that just talking about it makes them uncomfortable. Yeah, I have cancer, but I'm not dying. It's not like I have a large, hairy nut sack growing from my chin. Yet, that would make some people more comfortable than cancer.
Cancer can be a big deal, but only if people make it one. Yes, people can die from it, but more people die from eating at McDonald's. There are worse things in the world than a cancer, like liver and onions. I know it can be scary, but why is it any more scary than driving down the street or eating my mother in laws cooking. I do appreciate the good thoughts of others and all the help they have offered. And I understand why some people don't want to be near me like I haven't bathed in months (It's only been 2 days). What I don't understand is why this has to happen because I have something called cancer. It would be much easier to understand if I got these reactions because I teach at-risk kids, or have weird facial hair.
Like all things in life, we have to take the good with the bad. I will always have time for people who call and want to know how I am doing, although the answer will always be fine. I will be grateful for any and all help people are willing to give to my family and I will be understanding of those who can't be around me right now. One of the powers I have received as Cancer Boy is the power to deal with all things with a smile on my face so that I can help others with their fears and worries. And, once everyone is back in their happy place I can do that which I love most; spend time with my family and play HALO. Notice, people don't feel bad for me that I play video games - they make fun of me for that yet I die while playing video games; with cancer, I'm not even sick.
Monday, December 22, 2008
Chapter 1: The Cancer Exposed
So, after months of testing, I was diagnosed with Hodgkin's Lymphoma, Stage 2. Now, I know that it is a fairly mild case of Hodgkin's, but cancer is cancer. Since the testing began, I have been contemplating how this will effect my life style and the conclusion I have come to is that it will make me more cynical than I already am. However, I have decided to use my new super powers to fight evil, or at least the cancer that has attacked my body.
As I prepare to start Chemotherapy, I pondered what this means exactly. I will be doing 4 cycles of chemo, or 4 months. Each cycle consists of 2 treatments given every other week. Each treatment costs about $5ooo. So, I am going to be paying my doctor about $40,000 to poison me. Now he claims that he is going to be saving my life, which I could believe if I felt even a little sick or was experiencing any of the physical symptoms of Hodgkin's. However, as I feel as good as I did a 5 years ago, I wonder if the $40,000 isn't just a little too much.
Yeah, I know, how much is my life worth?? I would hope more than $40,000, but it still seems excessive to pay that much to poison somebody. If I wanted to poison my boss, I could pay somebody $10,000 to put arsenic in his Coors Lite. If I was in the mob, I'd probably do it for free. As such, I find it difficult to defend the exorbitant expense, however, I hope that this blog will help me come to terms with the financial rape I am about to receive.
As to the cancer itself, I feel somewhat like a phony. Sure, I have cancer, but it's not life threatening, it is highly treatable and there is a only a slim chance it will ever come back. Does this make me a cancer poser?? It's not like the Dr. said I only have 5 months to live. Instead, I have a few months of treatment then it's all better. It's like I got syphilis, but of the lymph nodes.
I start chemo in a week. Until then, I am in a holding pattern as the cancer continues to eat away at my lymph nodes. However, since I don't feel the tiny teeth chomping away, it's not all bad. So, until the poison starts eating away at my system, Cancer Boy will continue to fight the good fight.
Stay tuned for the next adventure of Cancer Boy: Why chemotherapy is like a hard kick to the testicles.
As I prepare to start Chemotherapy, I pondered what this means exactly. I will be doing 4 cycles of chemo, or 4 months. Each cycle consists of 2 treatments given every other week. Each treatment costs about $5ooo. So, I am going to be paying my doctor about $40,000 to poison me. Now he claims that he is going to be saving my life, which I could believe if I felt even a little sick or was experiencing any of the physical symptoms of Hodgkin's. However, as I feel as good as I did a 5 years ago, I wonder if the $40,000 isn't just a little too much.
Yeah, I know, how much is my life worth?? I would hope more than $40,000, but it still seems excessive to pay that much to poison somebody. If I wanted to poison my boss, I could pay somebody $10,000 to put arsenic in his Coors Lite. If I was in the mob, I'd probably do it for free. As such, I find it difficult to defend the exorbitant expense, however, I hope that this blog will help me come to terms with the financial rape I am about to receive.
As to the cancer itself, I feel somewhat like a phony. Sure, I have cancer, but it's not life threatening, it is highly treatable and there is a only a slim chance it will ever come back. Does this make me a cancer poser?? It's not like the Dr. said I only have 5 months to live. Instead, I have a few months of treatment then it's all better. It's like I got syphilis, but of the lymph nodes.
I start chemo in a week. Until then, I am in a holding pattern as the cancer continues to eat away at my lymph nodes. However, since I don't feel the tiny teeth chomping away, it's not all bad. So, until the poison starts eating away at my system, Cancer Boy will continue to fight the good fight.
Stay tuned for the next adventure of Cancer Boy: Why chemotherapy is like a hard kick to the testicles.
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